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Correspondence| Volume 208, P95-96, April 01, 2016

“Rare” diseases: Motivated patients make the difference

  • Author Footnotes
    1 This author takes responsibility for all aspects of the reliability and freedom from bias of the data presented and their discussed interpretation.
    Christa E. Kuck
    Footnotes
    1 This author takes responsibility for all aspects of the reliability and freedom from bias of the data presented and their discussed interpretation.
    Affiliations
    University of Michigan Health System, Internal Medicine — Cardiology, Ann Arbor, MI, United States
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  • Author Footnotes
    1 This author takes responsibility for all aspects of the reliability and freedom from bias of the data presented and their discussed interpretation.
    Steven T. Heidt
    Footnotes
    1 This author takes responsibility for all aspects of the reliability and freedom from bias of the data presented and their discussed interpretation.
    Affiliations
    University of Michigan Health System, Internal Medicine — Cardiology, Ann Arbor, MI, United States
    Search for articles by this author
  • Author Footnotes
    1 This author takes responsibility for all aspects of the reliability and freedom from bias of the data presented and their discussed interpretation.
    Eva Kline-Rogers
    Correspondence
    Corresponding author at: 24 Frank Lloyd Wright Drive, Domino's Farms/Lobby A/MCORRP, Suite 3700, Room 3201, PO Box 0384, Ann Arbor, MI 48105, United States.
    Footnotes
    1 This author takes responsibility for all aspects of the reliability and freedom from bias of the data presented and their discussed interpretation.
    Affiliations
    University of Michigan Health System, Internal Medicine — Cardiology, Ann Arbor, MI, United States
    Search for articles by this author
  • Author Footnotes
    1 This author takes responsibility for all aspects of the reliability and freedom from bias of the data presented and their discussed interpretation.
Published:January 20, 2016DOI:https://doi.org/10.1016/j.ijcard.2016.01.199
      Dr. Seuss once wrote, “Unless someone like you cares a whole awful lot, nothing is going to get better. It's not.” [
      • Geisel T.
      The Lorax.
      ].

      Keywords

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      References

        • Geisel T.
        The Lorax.
        Random House, New York1971
        • Olin J.W.
        • Froehlich J.
        • Gu X.
        • et al.
        The United States Registry for Fibromuscular Dysplasia: results in the first 447 patients.
        Circulation. 2012; 125: 3182-3190
        • Kim E.S.H.
        • Olin J.W.
        • Froehlich J.B.
        • et al.
        Clinical manifestations of fibromuscular dysplasia vary by patient sex: a report of the United States Registry for FMD.
        Stroke. 2013; 42: 7.9
        • Weinberg I.
        • Gu X.
        • Giri J.
        • et al.
        Anti-platelet and anti-hypertension medication use in patients with fibromuscular dysplasia: results from the United States Registry for Fibromuscular Dysplasia.
        Vasc. Med. 2015; (1358863X15584982)
        • Sharma A.M.
        • Kline B.
        The United States Registry for Fibromuscular Dysplasia: new findings and breaking myths.
        Tech. Vasc. Interv. Radiol. 2014; 17: 258-263
        • O'Connor S.C.
        • Olin J.W.
        • Gornik H.L.
        Top 8 lessons learned from the United States Registry for FMD.
        Endovasc. Today. 2014; 2: 32-37